Management of ITP with Eltrombopag 50 mg

[tinwalker]

Hi,

I have had ITP for eight years now, and when my platelets are low, I find myself looking through various discussion forums for words of wisdom and inspiration. While I did not engage much, I used to read through the forums, which gave me strength and motivation by looking up to my fellow mates.

This is my first posting, so this feels like a milestone. While dealing with ITP, I go through times of remission and then, for no apparent reason, crash to low counts, which then get medication attention. My doctor has changed my medications many times during this course of treatment; however, I’ve been using Revolade tablets for the past three months, and it has been a game-changer. The active ingredient in these tablets is eltrombopag and trust me, it’s highly effective. I began with a daily dose of 50 mg, and to my surprise, my platelet count rose to 352 within just two weeks!

This improvement has been a huge relief for me, allowing me to feel more like myself again. During this treatment, I also face a few side effects like extreme tiredness and decreased appetite. The best thing was that they went away on their own, as my doctor said. I have also read on a few forums where people have trouble sleeping or painful urination while on this medication. But touchwood, I didn’t experience any.

Now, the reality…
I believe that any disease or problem affects not only one individual but the whole family, which has to bear the repercussions. I’m blessed to have an amazing partner by my side who has supported me through thick and thin. There were days when I was not able to keep up well with my responsibilities, like going to the office, doing household chores, looking after the kids. I felt too weak inside to even get up from the bed and go to the washroom, and in those times, my husband took the lead. He was the one who took all the responsibility on his shoulders.

Managing ITP can be challenging, and I understood it a loooong time ago. Earlier, I used to get frustrated; I was emotional over it and what not. But with time, I made myself understand that this is something I have to deal with as a fighter and overcome my inner fears. To motivate myself, I come to such forums and discussions and hear what other people have to say about their experiences. I joined yoga classes, and I sometimes go to dance classes to lighten up my mood and spend quality family time.

I have always wanted to travel around the world but never got a chance, but now that I feel better, I plan to visit Paris sometime this fall. I’ve started to look at my condition in a positive way, and I believe God is with me; he’s helping me fight it.

If anyone else has experience with eltrombopag or is currently navigating similar challenges, I’d love to hear your stories and tips. This community is such a valuable resource, and I hope my experience can inspire others who are also dealing with ITP.